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By Edyth Ann Knox
Experts say that all types of agitating behaviors are forms of communication. Your loved one is trying to tell you something even though the disease has robbed them of other ways (i.e., talking) of telling you. Perhaps your loved one is frightened or fatigued and does not know how to express it in words. Some experts believe that agitation behavior is "the inability the deal with stress."
"Sundowning" is a state of increased agitation, activity and negative
behaviors, which happen late in the day through the evening hours. It
used to be thought that sundowning was caused by the lowering light and
shorter days. However, research now indicates that being overly tired
may have more to do with sundowning. Here are some suggestions on how
to minimize the negative behaviors associated with sundowning:
1) Make sure that your Loved One is well rested: I know that this is
easier said then done. It does help though if you can get your Loved
One to take a nap just before their normal period of sundowning. If
they cannot or will not nap, an hour quiet time (reduced stimulation
and activity) will work. I used to sit Millie down in her recliner,
turn off the TV, turn on some soft music and then I would sit next to
her doing a quiet activity such as cross stitch or crocheting. We sat
quietly for an hour and talked or just relaxed. I found that she rested
much better and would even dose off if I took a nap/break with her. I
was more relaxed also!
2) Limit outings and activities to the morning hours: Generally the
individual with Alzheimer’s Disease is better able to tolerate outings,
activities and increased stimulus during the earlier part of the day.
Plan your trips to the grocery store, involvement with kids, visits to
day care and so forth during the earlier part of the day. This should
be followed with a time of decreased stimulus and quiet time to allow
your Loved One to wind down and relax.
3) Decrease the length and amount of stimulus: Even during the earlier
part of the day the individual with Alzheimer’s Disease can only
tolerate so much stimulation and commotion. Take steps to eliminate
over-stimulation such as television, children, and any noise making
item, quick movements and many things going on at one time. Sometimes
excessive stimulation cannot be avoided. When that happens, allow your
Loved One to have a quiet area to retreat to.
4) Identify and minimize physical discomfort: Other types of physical
discomfort can also play a part in sundowning. Hunger; being wet or
soiled, feeling cold/hot and other sources of discomfort can increase
agitation, especially in the late afternoon and early evening. Light
snacking during the day can be helpful. Apples and other fruits can
help replace lost energy – even if your Loved One is pacing back and
forth, that does not mean they have an endless supply of energy. Make
sure that your Loved One’s personal needs are attended to and that the
climate is at a comfortable level.
5) Identify and treat medical ailments: Many ailments can contribute to
sundowning and agitation. Arthritis can be one of the most common
causes. An over-the-counter painkiller as recommended by your Loved
One’s physician before the time of sundowning might be of great
benefit. Urinary Tract Infections (UTI), flus/colds, asthma, allergies
and other conditions are all medical ailments that can contribute to
sundowning. It is always a good idea that when your Loved One first
begins to exhibit sundowning or when sundowning becomes common to take
them to the doctor to make sure that there is nothing ailing her.
6) Be observant to possible causes: Many times there are triggers to
agitation leading to sundowning. One time, we bought our kids a video
game so that they had something to play with. We found that the noise
from the video game would set Milly off as soon as they started
playing. We placed the video game in a room that was out of the way and
she could not hear it and it really helped decrease the sundowning.
Providing the kids with a separate private area helped both with them
as well. Mirrors also became a trigger as well as a picture of Milly's
daughter. Watching to see what is going on, what events are happening
and who is present prior to sundowning can help reveal some causes (and
solutions).
Sometimes no matter what we do sundowning will happen. If we cannot
prevent it we can help lessen it or at least make it less unpleasant
for our Loved Ones and those around them.
7) Provide a private "time out" space for your Loved One: Early on, we
made sure that the kids and us all had private off-limits areas but it
became obvious Milly had to have hers too. Milly did retreat to her
room if things became too much so it became her natural private area.
Her room was off limits to kids and general traffic. I was the only one
who did enter there and even then I limited it to certain times. There
were times that Milly had to get away from us as much as we had to get
away from her, which brings me to the next step.
8) Clear the house: There were times that nothing we did would ease
Milly during one of her most aggressive sundowning episodes. I would
often send my husband and the kids to the movies or to some outing,
turn off unneeded lights, turn off the TV/radios and either go to my
quiet corner or go sit outside for a moment. I always made sure the
house was safe for Milly; I never did leave her; and I was always close
by. I would then change my hair by tying it up if it was down, letting
it down if it was up, change my blouse and re-enter the general living
area where Milly was turning up the lights in the room. Milly most
often would see me as a friendly face and greet me happily.
9) Check with the doctor: If sundowning is particularly troublesome,
you may need some extra help with prescription medication. Talk with
the doctor to let him know of the behaviors, time of day and how your
Loved One is behaving before sundowning. He may be able to help you by
prescribing a medication to help ease the symptoms. Medication is a
last resort and may take several attempts with different drugs and
doses to find the right one that will work for your Loved One. If the
medication does not help, do not become discouraged, relay the
information to the doctor and he may either adjust the dosing or change
the medication. Always ask the doctor to start with the smallest dose
possible. Medication is only meant to take the "edge" off the behavior,
it is not meant to make your Loved One dopey or groggy,
10) Keep things simple: Keep the surroundings as simple as possible. Be
sure your Loved One’s walking paths are clear from clutter and
obstacles. Low furniture such as coffee tables and footstools can make
it difficult for your Loved One and a become a source of frustration.
Keep knickknacks to a minimum and the tops of tables, television
shelves and other surfaces as clear as possible. Mirrors and pictures
can often become unfriendly visitors that the individual with
Alzheimer’s disease cannot understand. Complicated, noisy appliances
are also frustrating to them. Avoid changing things once you have
things simplified. Changes of any kind are extremely frustrating.
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